“I am an early year’s consultant. My professional role involves supporting and challenging schools, private nurseries and children’s centres.”
“I have a complicated eye history which includes congenital cataracts, retinal detachments, glaucoma and myopic macular degeneration.”
“In the context of this, I am the group leader for the Leeds Macular Society, working age group. As a group we have varying levels of knowledge of genetics, the common thread is that people want to learn more.”
“As group leader for Leeds Macular Society, I am able to share information between project and the many members of the group who are affected by inherited retinal disease.”
“As there is not yet a cure for the various types of macular degeneration and other conditions affecting our group members, giving people a voice in the project is a way of enabling us to contribute positively, this in turn has a massive impact on well-being and self-esteem.”
“As well as support and understanding, my hope is that the 100,000 genomes project eventually provides answers for many people just like me .”
Join our panel!
We are extremely keen to hear from as broad a section of the population we serve as possible. You can find out more about our panel, and how to join by visiting our page here or by contacting Debbie Beirne on firstname.lastname@example.org