“I have spent the last 20 years working with Early Years Foundation stage children and currently work as a support worker, working with families and children offering support in their own homes for children with life limiting conditions.”
“I have 2 children one of which are disabled and have an undiagnosed genetic condition.”
“I also volunteer as the Parent Representative for SWAN UK in South Yorkshire working closely alongside many other families with undiagnosed children.”
“I am hoping that my experiences in the last few years will help in my role in the Yorkshire & Humber NHS Genomic Medicine Centre PPI panel and give a voice to undiagnosed families.”
Join our panel!
We are extremely keen to hear from as broad a section of the population we serve as possible. You can find out more about our panel, and how to join by visiting our page here or by contacting Debbie Beirne on email@example.com